By Julie Roberts | February 08, 2018
I lay in the intensive care unit (ICU) pondering the latest devastating news and yet another autoimmune diagnosis. I have been mostly homebound now for 14 years. My son’s innocence was lost early on as he watched me struggling to breathe or to take a step over the years. There is so much uncertainty about how I will raise and coach my son to college and into adulthood and about my health and further disabilities in coming years. I am blessed with many organizations and resources in my
By Tamar Weinberg | August 31, 2017
Adam Krief was a rockstar in his own right. The Los Angeles-based father of three, who succumbed to a rare form of cancer at the age of 32, spearheaded a worldwide movement within the Jewish, but particularly Sephardic Jewish, community to encourage others with similar heritage to get swabbed to find out their eligibility as a bone marrow match. After Krief’s passing in March, almost a year after his diagnosis, the #Hope4Adam movement lives on with 44 people having been matched in cities such as New York, Tel
By JLBWC Staff | October 13, 2016
For parents grappling with their own serious illness, summer is a time of fear and uncertainty. Like everyone else, they are well aware of how necessary a positive summer experience is to a child’s development. All the more so for their children, who spend the year confronted with adult burdens and concerns. They desperately need a chance to relax, to get away from it all, and to just be kids again. The realities of disease, however, have depleted the family’s emotional and financial resources. Even if they
